Paroxysmal Nocturnal Hemoglobinuria Quiz

My tested results have not shown hemolysis.

One result was borderline or temporarily abnormal, without a continuing pattern.

Repeated results have suggested hemolysis, such as abnormal LDH, bilirubin, haptoglobin, or reticulocytes.

A clinician identified active intravascular hemolysis requiring prompt investigation, monitoring, or treatment.

I have not been diagnosed with or evaluated for a bone-marrow failure disorder.

A clinician considered a marrow problem, but no such disorder was diagnosed.

I have a diagnosed marrow condition other than aplastic anemia, such as a myelodysplastic disorder.

I have been diagnosed with aplastic anemia or another significant bone-marrow failure syndrome.

None of these chest or breathing experiences.

Brief mild discomfort or breathlessness that settled promptly and has not returned.

Recurring breathlessness or sharp chest discomfort, particularly when taking a breath.

Sudden chest pain, severe breathing difficulty, coughing blood, blue lips, or fainting.

I have not had unexplained abdominal pain.

I have occasionally had mild cramps that resolved without other warning signs.

Pain has persisted, recurred, or become strong enough to stop normal activity.

Pain was sudden or severe, or occurred with fainting, a rigid abdomen, bloody stool, or vomiting blood.

I have not had unexplained one-sided swelling or pain.

I had mild one-sided puffiness or aching that resolved quickly, such as after activity.

I have had unexplained swelling, warmth, tenderness, or pain that persisted or returned.

I developed sudden marked swelling, strong pain, discoloration, or a cold or weak limb.

I have not been assessed or treated for a suspected blood clot.

A clinician assessed a possible clot, but testing did not find one.

I have been diagnosed with a superficial vein clot or received follow-up for a possible recurring clot problem.

I have had a confirmed deep-vein, lung, brain, liver, abdominal, or other major blood clot.

No abnormal counts have been reported on the blood tests I have had.

One count was mildly abnormal and later returned to the expected range.

One or more cell types have been repeatedly low without a settled explanation.

Low counts have caused serious symptoms or required urgent treatment or hospitalization.

I have not noticed urine like this apart from an expected cause, such as food, medication, or menstruation.

I noticed one brief, unexplained episode that resolved.

I have had repeated or prolonged unexplained episodes, sometimes more noticeable after waking or illness.

It occurred with very little urine, fainting, severe weakness, or intense side or back pain.

PNH flow cytometry has not been discussed or ordered for me.

A clinician has discussed whether PNH testing might be appropriate.

PNH flow cytometry was ordered, performed, or scheduled for repeat monitoring.

A laboratory report identified a PNH clone, whether small or large.

I have not had a new or unexplained pattern like those described.

I have had recurring headaches without sudden onset or neurological changes.

I developed a distinctly unusual or severe headache that persisted or required medical assessment.

I had a sudden extreme headache, seizure, face drooping, one-sided weakness, or sudden trouble speaking or seeing.

I have not experienced that combination.

It happened once and was mild and brief.

It has recurred or lasted long enough to interrupt meals, sleep, or normal activities.

The pain became intense, rapidly worsened, or occurred with fainting or repeated vomiting.

I have not noticed unexplained yellowing.

I once noticed a slight, short-lived yellow tint that was not medically confirmed.

The yellowing has been clear, recurring, or noticed by other people.

Yellowing appeared with confusion, fever, fainting, or severe abdominal pain.

I breathe as expected for the activity.

I am occasionally more winded than expected but recover quickly with rest.

Unexplained breathlessness, racing heartbeat, or lightheadedness repeatedly makes me stop.

I become breathless at rest, faint, or cannot speak comfortably because of breathing difficulty.

I have not needed treatment for unexplained anemia or low blood counts.

I needed a short course of treatment or one transfusion for a temporary or identified cause.

I have needed repeated transfusions or ongoing treatment for anemia or low counts that remain under investigation.

I have required urgent or recurrent transfusions, hospitalization, or intensive treatment alongside ongoing hemolysis or very low counts.

My energy is generally typical for me, without unexplained weakness.

I occasionally need extra rest but can continue my usual activities.

Weakness repeatedly limits work, school, exercise, or household activities.

I have had sudden extreme weakness, collapse, fainting, or difficulty remaining awake.