Do I Have Ehlers-Danlos Syndrome Quiz
Questions: 15 · 10 minutes
1. Without deliberately pulling or testing it, what have you noticed about how far your skin stretches during normal handling or medical care?
It appears noticeably more stretchable in several areas.
I have not noticed unusual stretchiness.
It appears markedly stretchable across multiple areas, or a clinician has specifically highlighted it.
One area has seemed mildly more stretchable than expected.
2. Which best matches your experience of joints slipping partly or fully out of place?
I have had one possible slipping episode that was not medically confirmed.
I have had repeated confirmed dislocations or episodes affecting multiple joints.
I have not experienced a joint slipping out of place.
I have had recurring partial slips or one clinician-confirmed dislocation.
3. Compared with the apparent cause, what is your pattern of bruising?
Large or frequent bruises appear after very minor contact or without a remembered cause.
I had one bruise that seemed larger than the cause would suggest.
Bruises sometimes appear after minor contact or without a clear cause.
My bruises generally match an identifiable bump or injury.
4. Across different parts of the body, how broad is the pattern you are considering?
It involves several areas, such as joints plus skin, healing, circulation, digestion, or pelvic support.
I am not experiencing a recurring pattern across body areas.
Multiple body systems are repeatedly affected, and the combined pattern has prompted or needs medical attention.
One body area has a mild or occasional relevant feature.
5. Outside expected contexts such as rapid growth, major weight change, or pregnancy, what has been your experience with unexplained stretch marks or tissue-support problems such as hernias or prolapse?
I have had either a small unexplained stretch-mark pattern or one tissue-support problem.
I have had recurrent or pronounced unexplained stretch marks, hernias, or prolapse.
I have not experienced these outside an expected context.
I have had more than one unexplained feature or a feature that required medical treatment.
6. What has happened when you have sought medical input for this overall pattern?
Several clinicians have documented relevant features, or specialist assessment has been recommended but remains incomplete.
One concern was mentioned, but no continuing pattern was identified.
Relevant findings have been documented at more than one visit, or a clinician has raised a connective-tissue explanation.
I have not had relevant findings documented and am not currently seeking evaluation for this pattern.
7. After cuts, procedures, or other wounds, how has healing usually progressed?
Healing has generally been ordinary, without unusual scars.
More than one wound healed slowly, reopened, or left a noticeably widened or sunken scar.
One wound took somewhat longer than expected or left an unusual scar.
Repeated wounds have reopened, healed very slowly, or left pronounced thin, widened, or sunken scars.
8. While walking, carrying things, or doing household tasks, what happens with joint stability?
I repeatedly need to brace or reposition joints to keep going.
My joints generally feel stable during these activities.
Joints often give way, significantly interrupt tasks, or make me avoid activities.
A joint occasionally feels wobbly, but the task can continue normally.
9. During ordinary movement, how would you describe joints that seem to bend farther than expected?
I have not noticed this in any joint.
One joint seems slightly more flexible than average.
Several joints clearly move farther than most people's.
Many joints have had pronounced extra movement for as long as I can remember.
10. Over the past several months, what pattern of joint or muscle pain have you experienced?
No recurring joint or muscle pain.
Pain returns on multiple days or affects more than one area.
Brief discomfort sometimes follows heavier-than-usual activity.
Pain has persisted for at least three months and regularly limits sleep or daily activity.
11. After everyday activity or relatively minor strain, how often do sprains or similar soft-tissue injuries occur?
They recur with ordinary activities or happen in several body areas.
I recall one minor episode that seemed disproportionate to the activity.
They occur occasionally after activities that would not usually cause injury.
I have not noticed an unusual pattern of these injuries.
12. Based on what you know, which statement best describes similar connective-tissue features among your biological relatives?
One relative has unusual flexibility or related symptoms but no known diagnosis.
A parent, sibling, or child has a diagnosed Ehlers-Danlos syndrome or another confirmed inherited connective-tissue disorder.
No biological relative is known to have a similar pattern.
A relative has a diagnosed or actively investigated connective-tissue condition but is not a parent, sibling, or child.
13. On a typical week, how do these experiences affect school, work, sleep, mobility, exercise, or household responsibilities?
They sometimes require a small adjustment but do not regularly interrupt plans.
They frequently prevent activities, require substantial support, or disrupt several parts of daily life.
They do not affect my usual activities.
They repeatedly require pacing, recovery time, braces, changed plans, or missed activities.
14. How often has your skin's texture been described as unusually soft or velvety?
I have independently noticed a slight difference in one area.
Several people or a clinician have clearly remarked on a widespread unusual texture.
Neither I nor others have noticed an unusual texture.
I have noticed it in several areas, or another person has mentioned it more than once.
15. When did the combination of joint, skin, or tissue experiences reflected in this quiz become apparent?
A clear pattern was already present in childhood and has continued or expanded.
One relevant feature appeared recently or in a single isolated period.
Several relevant features emerged over time and have recurred.
I have not noticed a continuing combination of these features.